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Diagnosis in Autism
A Survey of Over 1200 Patients in the UK
Patricia Howlin
St George's Hospital Medical School, London, UK
Anna Moorf
Guy's Hospital, London, UK
The results of a survey of almost I300 parent members of autistic societies in the UK are described. The ages of their children ranged from 2 to 49 years. The survey focused on parents' views of the diagnostic process and data were collected on the age at which diagnosis was made, the time taken to obtain a diagnosis and the professionals involved. Differences in geographical area were also assessed. Overall, the results indicate that children are now being diagnosed earlier than in previous decades, but the average age of diagnosis is still around 6 years. There are also wide regional variations in diagnosis. The survey indicates that many parents continue to experience lengthy and often frustrating delays before they finally receive a diagnosis. Moreover, even when this process is completed, the amount of practical help subsequently provided is generally very limited. Factors related to parental satisfaction with the diagnostic process are discussed in detail.
Key Words: diagnosis • parent views • UK survey
Autism, Vol. 1, No. 2,
135-162 (1997)
DOI: 10.1177/1362361397012003
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