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The Experience of Parents in the Diagnosis of Autism
A Pilot Study
Kenny Midence
University of Wales, Bangor, UK
Meena O’neill
University of Wales, Bangor, UK
Research literature on experiences of parents seeking a diagnosis of autism for their child is scarce. In order to explore this, a pilot study was conducted with four parents of children with autism in North Wales. Semi-structured interviews were conducted to elicit parents’ experiences, and the responses analysed using a grounded theory approach. Six core categories emerged. These included parents’ difficulties in understanding their child’s behaviours and the confusion that resulted from their inability to make sense of these behaviours, and problems in obtaining a diagnosis. The findings also reflect parents’ experience of relief after the correct diagnosis was made. This appeared to enable them to understand and accept autism and the limitations imposed on their child; to improve adaptation to the condition within the family life; and to foster more realistic expectations of their child’s future.
Key Words: autism • diagnosis • grounded theory • parents
Autism, Vol. 3, No. 3,
273-285 (1999)
DOI: 10.1177/1362361399003003005
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