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Autism
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The health and social care needs of family carers supporting adults with autistic spectrum disorders

Dougal Julian Hare

University of Manchester, UK

Catherine Pratt

Manchester Learning Disabilities Partnership, UK

Mark Burton

Manchester Learning Disabilities Partnership, UK

Jo Bromley

Central Manchester and Manchester Children’s University Hospital NHS Trust, UK

Eric Emerson

Institutefor Health Research, University of Lancaster, UK

The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between parental emotional distress and unmet need was found. Parents also reported a need for more autism-specific intervention and support for adults with ASDs. The study illustrates the continuing and underreported role of families in supporting adults with ASDs.

Key Words: autism • families • mental • health • respite • stress

Autism, Vol. 8, No. 4, 425-444 (2004)
DOI: 10.1177/1362361304047225
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D. Saldana, R. M. Alvarez, S. Lobaton, A. M. Lopez, M. Moreno, and M. Rojano
Objective and subjective quality of life in adults with autism spectrum disorders in southern Spain
Autism, May 1, 2009; 13(3): 303 - 316.
[Abstract] [PDF]