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Autism
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Economic cost of autism in the UK

Martin Knapp

Kings College, London, Institute of Psychiatry, UK, m.knapp{at}lse.ac.uk, London School of Economics and Political Sciences, UK

Renée Romeo

Kings College, London, Institute of Psychiatry, UK

Jennifer Beecham

London School of Economics and Political Science, UK, University of Kent, UK

Autism has lifetime consequences, with potentially a range of impacts on the health, wellbeing, social integration and quality of life of individuals and families. Many of those impacts are economic. This study estimated the costs of autism spectrum disorders (ASDs) in the UK. Data on prevalence, level of intellectual disability and place of residence were combined with average annual costs of services and support, together with the opportunity costs of lost productivity. The costs of supporting children with ASDs were estimated to be £2.7 billion each year. For adults, these costs amount to £25 billion each year. The lifetime cost, after discounting, for someone with ASD and intellectual disability is estimated at approximately £1.23 million, and for someone with ASD without intellectual disability is approximately £0.80 million.

Key Words: ASD • autism • costs • economics • families • services

References

  • Aitken, K. (2001) `Autism Increase', New Scientist 12 March.
  • Atladottir, H.O., Parner, E.T., Schendel, D., Dalsgaard, S., Toomsen, P.H. & Thorsen, P. (2007) `Variations in Incidence of Neurodevelopmental Disorders with Season of Birth', Epidemiology 18 (2): 240-5.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Baird, G., Simonoff, E., Pickles, A., Chandler, S., Loucas, T., Meldrum, D. & Charman, T. (2006) `Prevalence of Disorders of the Autism Spectrum in a Population Cohort of Children in South Thames: The Special Needs and Autism Project (SNAP)', Lancet 368: 210-15.[CrossRef][Medline] [Order article via Infotrieve]
  • Barnard, J., Harvey, V., Potter, D. & Prior, A. (2001) Ignored or Ineligible? The Reality for Adults with Autism Spectrum Disorders. London: National Autistic Society.
  • Bebbington, A. & Beecham, J. (2007) `Social Services Support and Expenditure for Children with Autism', Autism 11 (1): 43-61.[Abstract/Free Full Text]
  • Beecham, J. & Knapp, M. (2001) `Costing Psychiatric Interventions', in G. Thornicroft (ed.) Measuring Mental Health Needs. London: Gaskell.
  • CDC (2007) `Prevalence of Autism Spectrum Disorders: Autism and Developmental Disabilities Monitoring Network 14 Sites United States', MMWR Surveillance Summaries 9 February, 56 (SS01): 12-28. Centers for Disease Control and Prevention.
  • Chadwick, O., Taylor, E. & Bernard, S. (1998) The Prevention of Behaviour Disorders in Children with Severe Learning Disabilities. Final Report to the NHS Executive. Institute of Psychiatry.
  • Chakrabarti, S. & Fombonne, E. (2005) `Pervasive Developmental Disorders in Preschool Children: Confirmation of High Prevalence', American Journal of Psychiatry 162: 1133-41.[Abstract/Free Full Text]
  • Cooper, S.A., Morrison, J., Melville, C., Finlayson, J., Allan, L., Martin, G. & Robinson, N. (2006) `Improving the Health of People with Intellectual Disabilities: Outcomes of a Health Screening Programme after 1 Year', Journal of Intellectual Disability Research 50 (9): 667-77.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Croen, L., Najjar, D.V., Ray, T., Lotspeich, L. & Bernal, P. (2006) `A Comparison of Health Care Utilization and Costs of Children with and without Autism Spectrum Disorders in a Large Group: Model Health Plan', Pediatrics 118 (4): e1203-e1211.[Abstract/Free Full Text]
  • Curtis, L. & Netten, A. (2005) Unit Costs of Health and Social Care 2005. Canterbury: Personal Social Services Research Unit.
  • Dearden, L., McGranahan, L. & Sianesi, B. (2004) `Returns to Education for the "Marginal Learner": Evidence from the BCS70', Discussion Paper 45, Centre for the Economics of Education, London School of Economics, London.
  • Department of Health (2001) Valuing People: A New Strategy for Learning Disability for the 21st Century. Cm 5086. London.
  • Department of Health (2005) Independence,Well-being and Choice: Our Vision for the Future of Adult Social Care. London.
  • Department of Health (2006) `Better Services for People with an Autistic Spectrum Disorder: A Note Clarifying Current Government Policy and Describing Good Practice', London.
  • Emerson, E., Mallam, S., Davies, I. & Spencer, K. (2005) Adults with Learning Difficulties in England 2003/4. London: Office of National Statistics and NHS Health and Social Care Information Centre.
  • Felce, D., Perry, J., Romeo, R., Meek, A., Robertson, J., Emerson, E. & Knapp, M. (2008) `Outcomes and Costs of Community Living: Semi-Independent Living and Fully Staffed Group Homes', American Journal on Mental Retardation 113 (2): 87-101.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Filipek, P.A., Accardo, P.J., Baranek, G.T., Cook, E.H. Jr, Dawson, G., Gordon, B., Gravel, J.S., Johnson, C.P., Kallen, R.J., Levy, S.E., Minshew, N.J., Prizant, B.M., Rapin, I., Rogers, S.J., Stone, W.L., Teplin, S., Tuchman, R.F. & Volkmar, F.R. (1999) `The Screening and Diagnosis of Autism Spectrum Disorders', Journal of Autism and Developmental Disorders 29 (6): 439-84.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Fombonne, E. (2005) `The Changing Epidemiology of Autism', Journal of Applied Research in Intellectual Disabilities 18 (4): 281-94.[CrossRef][Web of Science]
  • Ganz, M.L. (2007) `The Lifetime Distribution of the Incremental Societal Costs of Autism', Archives of Paediatrics and Adolescent Medicine 161 (4): 343-9.[CrossRef]
  • Greco, V., Sloper, P., Webb, R. & Beecham, J. (2005) An Exploration of Different Models of Multi-Agency Partnerships in Key Worker Services for Disabled Children: Effectiveness and Costs. London: Department for Education and Skills.
  • Green, H., McGinnity, A., Meltzer, H., Ford, T. & Goodman, R. (2005) Mental Health of Children and Young People in Great Britain, 2004. London: Stationery Office.
  • Green, J., Jacobs, B., Beecham, J., Dunn, G., Kroll, L., Tobias, C. & Briskman, J. (2007) `Inpatient Treatment in Child and Adolescent Psychiatry: An Exploratory Prospective Study of Health Gain and Costs', Journal of Child Psychology and Psychiatry 48 (12): 1259-67.[Web of Science][Medline] [Order article via Infotrieve]
  • HM Treasury (2004) The Green Book: Appraisal and Evaluation in Central Government. London: Stationery Office.
  • Howlin, P., Goode, S., Hutton, J. & Rutter, M. (2004a) `Adult Outcomes for Children with Autism', Journal of Child Psychology and Psychiatry 45 (2): 212-29.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Howlin, P., Alcock, J. & Burkin, C. (2004b) `An 8 Year Follow-Up of a Specialist Support Employment Service for High-Ability Adults with Autism or Asperger Syndrome', Autism 9 (5): 533-49.[CrossRef]
  • Järbrink, K. & Knapp, M. (2001) `The Economic Impact of Autism in Britain', Autism 5 (1): 7-22.[Abstract/Free Full Text]
  • Lawton, G. (2005) `The Autism Epidemic That Never Was', New Scientist 2512. 13 August.
  • Le Page, M. (2001) `False Alarm', New Scientist 2278. 17 February.
  • Leslie, D. & Martin, A. (2007) `Health Care Expenditures Associated with Autism Spectrum Disorders', Archives of Pediatric and Adolescent Medicine 161 (4): 350-5.[Abstract/Free Full Text]
  • Liptak, G., Stuart, T. & Auinger, P. (2006) `Health Care Utilisation and Expenditures for Children with Autism: Data from US National Samples', Journal of Autism and Developmental Disorders 36 (7): 871-9.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Mandell, D., Cao, J., Ittenbach, R. & Pinto-Martin, J. (2006) `Medicaid Expenditures for Children with Autistic Spectrum Disorders: 1994-1999', Journal of Autism and Developmental Disorders 36 (4): 475-85.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Motiwala, S., Gupta, S., Lilly, M., Ungar, W. & Coyte, P. (2006) `The Cost-Effectiveness of Expanding Intensive Behavioural Intervention to All Autistic Children in Ontario', Health Care Policy 1 (2): 135-51.
  • National Autistic Society (2006) How Many People Have Autism Spectrum Disorders? London: National Autistic Society.
  • Office of National Statistics (2005) First Release: 2005 Annual Survey of Hours and Earnings. 13-2-0007. London: Office of National Statistics.
  • Office of National Statistics (2006a) Interim Life Tables, United Kingdom. http://www.statistics.gov.uk/downloads/theme_population/Interim_Life/ILTUK0305.xls#`2003-05'!A1, 19 December 2006.
  • Office of National Statistics (2006b) Mid-2005 Population Estimates, United Kingdom: Estimated Resident Population by Single Year of Age and Sex. London: Office of National Statistics, General Register Office for Scotland, Northern Ireland Statistics and Research Agency.
  • Robertson, J., Emerson, E., Hatton, C., Elliott, J., McIntosh, B., Swift, P., Krijnen-Kemp, E., Towers, C., Romeo, R., Knapp, M.R.J., Sanderson, H., Routledge, M., Oakes, P. & Joyce, T. (2005) The Impact of Person Centred Planning. London: Department of Health.
  • Romeo, R., Knapp, M. & Scott, S. (2006) `Economic Cost of Severe Antisocial Behaviour in Children and Who Pays', British Journal of Psychiatry 188: 547-53.[Abstract/Free Full Text]
  • Rutter, M., Greenfeld, D. & Lockyer, L. (1967) `A Five to Fifteen Year Follow-Up of Infantile Psychosis. II: Social and Behavioural Outcome', British Journal of Psychiatry 113: 1183-9.[Abstract/Free Full Text]
  • Shimabukuro, T., Grosse, S. & Rice, C. (2007) `Medical Expenditures for Children with an Autism Spectrum Disorder in a Privately Insured Population', Journal of Autism and Developmental Disorders 38 (3): 546-52.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Tyrer, P., Oliver-Africano, P., Ahmed, Z., et al. (2008) `Risperidone, Haloperidol and Placebo in the Treatment of Aggressive Challenging Behaviour in Patients with Intellectual Disability: A Randomised Controlled Trial', Lancet 371: 57-63.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Wing, L. (1993) `The Definition and Prevalence of Autism: A Review', European Child and Adolescent Psychiatry 2 (2): 61-74.[CrossRef]
  • Wong, H.L. & Smith, R.G. (2006) `Patterns of Complementary and Alternative Medical Therapy Use in Children Diagnosed with Autism Spectrum Disorders', Journal of Autism and Developmental Disorders 36: 901-9.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]

Autism, Vol. 13, No. 3, 317-336 (2009)
DOI: 10.1177/1362361309104246
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This Article
Right arrow Abstract Freely available
Right arrow Free Full Text (Free PDF) Free
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*Autism
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